A disease that’s tough for even adults to deal with, offering flu-like symptoms, discomfort, and potential long-term disability, can prove especially daunting for children
Here are some tips for preventing Lyme disease in children and what to do in the event of infection.
Prevention tips
The best Lyme defense is a good offense against ticks, which carry the bacteria that cause the disease.
There are several ways to guard children against ticks. Children who live in endemic areas should avoid playing in tall grass, and leave piles or wooded areas. At least so far as ticks go, it’s safer for children to play on close-cut grass and, if out in nature, stick to the middle of trails.
Should a child be in an area with ticks, such as a nature field, it’s best they tuck their pants into their socks. Children can also wear insect repellent. Sprays with less than 10 percent DEET are safe for children over six months old and can help keep ticks away.
After playing outdoors or even just once a day during tick season, it’s wise for parents or older children to check themselves for ticks. Should one be found embedded in the skin, they’re best removed by tweezers or by a doctor.
Safely remove a tick from the child’s body as soon as possible. While a tick typically needs 24-48 hours on a child’s body to infect it with Lyme disease, infections can happen sooner than this. Thus, it’s important to remove a tick promptly and follow up with a Lyme Disease specialist.
Symptoms checklist
Anyone who believes their child might have Lyme disease should take their child to a pediatrician or Lyme-literate medical doctor as soon as possible. That said, here are some symptoms of Lyme disease in children.
Some Symptoms of Lyme Disease in Children may include
- Flu-like symptoms
- Low-grade fever and chills
- Swollen glands
- Poor appetite
- Sore throat
- Severe fatigue
- Eye inflammation
- Difficulty concentrating
- Learning Challenges
- Change in mood or sleep habits
- Itchy skin
- Bell’s palsy
- Stiff neck, headache
- Severe headache (meningitis)
- Pain, numbness, or weakness in the limbs
- aches and pains in muscles and joints and more
Can a stroke be a sign of Lyme disease in children?
Children can exhibit many symptoms of Lyme disease. One of the scarier symptoms is something that would seem unthinkable in a child — having a stroke.
An article from ScienceDaily breaks down this scenario:
‘Everything about her symptoms indicated stroke: speech deficits, poor comprehension, and right-sided face and arm weakness, so we considered treating her with clot-busting drugs,’ said lead study author Arseny Sokolov, MD, of the Department of Clinical Neuroscience, Centre Hospitalier Universitaire Vaudois in Lausanne, Switzerland. ‘But a 16-year-old having a stroke, while not unheard of, would be quite rare so we looked at other possibilities and found Lyme.’
Sadly, this symptom might be easier to spot in children than adults, as they’re more likely to suffer neurological side effects due to Lyme disease. What can appear to be a stroke in children can also be Lyme disease.
As the ScienceDaily article discusses, though, the symptoms are both noticeable and treatable.
Brain imaging was not suggestive of stroke either but revealed circumscribed brain dysfunction. The treatment team performed a spinal tap. The patient’s spinal fluid showed elevated white blood cell counts and Lyme neuroborreliosis was diagnosed, so the treatment team began a course of antibacterial and antiviral agents. The patient improved immediately after treatment began.
‘The imaging findings for the first time demonstrate acute brain dysfunction that appears to be directly related to neuroborreliosis,’ said senior co-author Renaud Du Pasquier, MD, neurology chairman at the Centre Hospitalier Universitaire Vaudois in Lausanne. ‘It may point out future perspectives for research on the underlying mechanisms.’
The article goes on to note that many Lyme sufferers have symptoms for a long time before being properly diagnosed and that they can experience serious long-term complications as a result. Thus, it’s important that a child exhibiting any stroke symptoms be taken as soon as possible to a Lyme-literate medical doctor.
What about behavioral changes?
It’s normal for a child to experience some behavioral changes as they grow. A child dealing with Lyme disease, though, can experience much more than this.
An article from the Texas Lyme Disease Association breaks it down.
Lyme Disease, often called ‘The Great Imitator,’ can mimic and cause learning disabilities and psychiatric illnesses. According to the American Journal of Psychiatry, ‘One-third of the psychiatric patients had serological signs of past Borrelia burgdorferi [the bacteria that causes Lyme disease] infections.’ Moreover, ‘Lyme disease in children may be accompanied by long-term neuropsychiatric disturbances, resulting in psychosocial and academic impairments.’
There is also an increasing body of evidence that may change the entire paradigm of what has been thought of as ‘psychiatric illnesses’ and ‘learning disabilities.’ Mounting research points to infectious diseases both mimicking and causing ‘psychiatric illnesses.’
The list of behavioral and psychiatric issues that children with Lyme disease can experience is long. These issues include:
The good news is that behavioral and psychiatric issues caused by Lyme disease are treatable. They are also preventable if the disease is diagnosed early.
What to do in the event of infection
Should a child appear to be infected with Lyme disease, it’s not the end of their or a parent’s world.
The first thing to do is get a diagnosis from a Lyme-literate doctor. Too often, Lyme disease is misdiagnosed or goes undiagnosed in people. The results can be especially heartbreaking for children. Getting a proper diagnosis might be a challenge since there are only a few pediatric Lyme doctors in the United States and medical insurance won’t pay for visits to them. But it’s worth making every available effort for the child’s sake.
The Texas Lyme Disease Association speaks to this, noting:
It is imperative that children receive a proper diagnosis and medical treatment whether or not the diagnosis is or is not Lyme disease. Qualified Lyme treating physicians have expertise and experience treating patients with Lyme disease and other tick-borne illnesses. A competent healthcare professional will make a differential diagnosis in an effort to ensure the correct diagnosis is made.
It can be helpful to take your child to be evaluated using the parameters presented in Dr. Robert Bransfield’s Neuropsychiatric Assessment of Lyme Disease
From there, the best course of treatment for pediatric Lyme disease can vary depending on the child. Some parents may opt to put their child onto a two to four-week cycle of an antibiotic such as doxycycline. A two-month cycle and probiotics can be even better for those who want to be on the safe side.
Other potential remedies for Lyme disease in children include, but are not limited to having them get a lot of rest; introducing probiotics into their system, which can help build healthy gut bacteria; giving them a healthier diet, with things like cold-pressed juice; and avoiding mold, ticks, and other parasites.
As far as costs go, families of children suffering from Lyme disease have some options. The Texas Lyme Disease Association notes, “A child with Lyme disease may be afforded rights under the Individuals with Disabilities Act (IDEA). Options may include either an Individualized Education Plan (IEP) or services under Section 504.”
Lyme disease can be tough for children to deal with. But it doesn’t have to derail their lives.